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Tips for parents
Resources
Considering end of life decisions
Resources:
www.thestatus.com - A website for families to provide friends and loved ones information about their hospitalized child.
Gilda’s Club – Provides meeting places where men, women and children living with cancer and their families and friends can join with others to build emotional and social support as a supplement to medical care.
Cancer Source Kids – Helping parents and children learn about cancer.
Children’s Organ Transplant Association – Provides fundraising assistance for children needing life-saving transplants and promotes organ, marrow and tissue donation.
Congenital Diaphragmatic Hernia Organization
Congenital Heart Defects – Provides information which can supplement what doctors and other professionals provide.
Let's Face It - Links professionals, parents and communities to information and support for living with facial difference.
Hoping Skills Company, founded by a bereaved parent and a Child Life Specialist, offers products and resources to help children and adults deal with illness, grief and loss. In addition to recommended books, they also have specially selected items and prepackaged coping kits. Extending to you the gift of hope, healing and peace for tomorrow.
BOOKS
Hi My Name Is Jack by Christina Beall-Sullivan – A book for healthy siblings of chronically ill children. You may order this book from: www.himynameisjack.com
The Real Angels Among Us by Phil Smart Sr. – This beautiful book documents the wisdom and enduring life-lessons learned from hospitalized children.
Going to the Hospital by Fred Rodgers – A book for children about going to the hospital.
Proud of our Feelings by Lindsay Leghorn – This book allows children to explore their own feelings.
The Moon Balloon by Joan Drescher - This book engages children and helps them understand healing and emotional processes that affect their relationships with others.
Kitchen Table Wisdom by Rachel Remen – A collection of true stories which will give anyone an intimate insight into what genuine healing is all about.
A Caregiver’s Survival Guide by Kay Marshall Strom
The Color Code by Taylor Hartman – A book explaining personality differences in relationships and how to understand why you may react one way and why someone close to you may react differently to the same event.
